We are at Nationwide Hospital in Columbus this week with our tiny yet mighty Evelyn. She was admitted on Sunday, with surgery on Monday.
It's been a week of hard things and sweet things. Recovery and giggles.
NG tubes, two IVs and a PICC line. Nurses, surgeons making rounds, cafeteria trays kept hidden, antibiotics, pain meds, an amazing Ronald McDonald House, Elsa socks, and vitals checks,
but also stillness, focus, and tender moments.
Steps forward and steps back.
Things to share and things to hold close.
Things to share and things to hold close.
Snuggling and playing.
Times of strength and times when we allowed ourselves not to be.
After about a day and a half of pain and feeling out of it post surgery, our mighty one's puffiness receded and she started taking walks with her daddy.
Then she had a couple days of energy surge, and had playtime with buddies and preschool craft hours. She's watched Frozen 23 times, painted turkeys from a rolling art cart, blown bubbles, had her nails polished in every color, and was loved on by some incredible nurses.
The end of the week brought fussiness, some weakness, extreme attachment to her momma, the return of pain meds, and lots of extra resting. Still, she giggles and likes to walk the halls looking for babies.
Our girl has been NPO (nothing my mouth) since Sunday. For the last seven days, her hydration and nutrition have come from this IV bag, in the form of dextrose, sodium chloride, and potassium. Amazingly, she only asks to eat and drink a couple times a day.
This week we've leaned in, stilled ourselves and focused on loving well. We have stories to tell of fellow patient friends, master surgeons, serving grandparents, a surprise visit from our urologist from home, the blessings of visitors, friends loving us well at home and nurses who are angels in training.
Our hope is that the NPO order will be lifted tomorrow night or Monday. The prayers of Team Evie are powerful, encouraging and carrying for us.
Evelyn is now a wee bit more tiny, but still is a mighty little soul.
Courage, dear heart.
-CS Lewis
6 comments:
Love this update! Continuing our prayers for your strong and mighty little one. There's another urologist who can't wait to finally meet her when we get home. Prayers from Kenya for you and yours always. We're praying HIS very best health and complete healing for you Team Evie! You encourage us in our own steps of faith! Love from here to each of you!
Thanks for this update. You guys are in my prayers and I am so grateful you feel all of the thoughts and prayers surrounding you. God's continuted blessings!
Continuing to pray for everyone! Those loving on Evie in person And those at home!!
Thinking of you as you focus on healing and love. Wish we could be there to do more. Hugs and love from the far north!
Many blessings and prayers always for your amazing family! :)
I'm stunned that they aren't giving her real nutrition intravenously called TPN. Have them mentioned it to you at all? It's expensive, so it's not often brought up, but after overhearing some doctors once discussing how babies with good insurance get it and medicare babies don't, I did some research and I was stunned at what I learned.
Post a Comment