Team Evie Update

"As soon as I saw you, I knew an adventure was going to happen." 

~Winnie the Pooh

 

The ride with tiny, but mighty Evelyn continues.  We are so humbled by, and grateful to, so many who have prayed for her, inquired about her, loved on her, encouraged us and helped in a hundred ways.  Forgive us for not doing a CaringBridge style update lately.  We appreciate your support so deeply and want you to know when to pray and when to celebrate! 

 

Evie had spine surgery in late May, and was so strong.  She recovered beautifully and clearly feels much better.  Thankfully, she is walking more easily and no longer has spasms of pain.  We know that that surgery contributed significantly to her overall well being.  Big neurosurgery celebration!

 

We are also happy to report that there have been no overnight hospital stays in June or July!   We have been able to have many, much needed days of summer fun.  (No big beach vacay yet, but we're dreaming one up for sometime soon.)  Our whole family has been able to rest and play, and we are so very grateful. 

 

The best news?  Evie's latest miracle is that our nephrologist reports that her one damaged kidney with reflux is currently functioning "mostly normally" and only suggested a new medicine and continued blood work!   Her bladder surgeries/procedures are saving her kidney.  Kidney party, friends, kidney party!  The unexpected news was a gift to our weary ears. 

 

We would love your continued prayers as Evie's journey is far from over.  Kidney infections remain our main concern, as it is so desperately important to protect that miracle kidney.  Our urologist is concerned and mentioned a potential "serious talk" about major bladder reconstruction.  This was in our girl's future, but years down the road. 

 

What's next for Evelyn is a week of consultations and testing with several specialists at Nationwide Hospital in Columbus, Ohio. There will be no surgeries on this trip, just lots of time with a team of doctors who specialize in kids like Evie.   Its time for the best of the best of surgeons to see our girl, so we are making the trek mainly for one particular surgeon.  Thanks to grandparents watching three kiddos and a Ronald McDonald House saving a room for us, we have big hopes for this trip. 

 

   We'd love your prayers for...

~safe travels

~Evie's heart and anxiety with more testing and more appointments

~wisdom, discernment and heart of surgical specialists

~gentleness of medical staff anytime they interact with Evelyn

~no more kidney infections

~for Mark and I to have endurance in our faith, hope, emotions and attitudes as we continue navigating this journey

~continued medical miracles